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FDSOL was started in 1997 and has been dedicated to providing answers, support, and hope for those with Fibrous Dysplasia and for their families. Our members share information on experiences with pain, treatments, research, therapy, and most of all on support for this disease. It is next to impossible to get to talk to someone with Fibrous Dysplasia because it is such a rare disease. At FDSOL you get to talk to many. Over 2500 members from 60+ countries have joined our community during the first 10 years on the web.

We invite you you to join our community here at FDSOL.

One of the advantages of joining our daily email list is you get to communicate on a daily basis with the members of our web site and review archive of past discussions. 

If you would like to join the FDSOL daily email list, drop from the list, or change your email address, please contact our FDSOL email moderator at the following address:

Fibrous dysplasia (FD) is a bone disease characterized by areas of abnormal growth or lesions in one, several, or many bones. FD can occur in any bone. The skull frequently is affected as are legs, arms, and ribs. The majority (about 70 %) of people with FD have only one bone site involved, a condition called monostotic FD. When FD is in more than one bone it is called polyostotic FD or PFD. About 10 % of those with polyostotic FD have some associated endocrine (hormonal) problems including precocious puberty and areas of increased skin pigment called cafe-au-lait marks. These birthmarks have irregular borders like the coast of Maine and, like the bone lesions, may be primarily on one side of the body. The combination of polyostotic fibrous dysplasia, endocrine disorders, and café-au-lait marks is called McCune Albright Syndrome (MAS).

McCune-Albright Syndrome (MAS) is named for the two physicians who described it over 50 years ago. They reported a group of children, most of them girls, with an unusual pattern of associated abnormalities: bone disease, with fractures, asymmetry and deformity of the legs, arms, and skull; endocrine disease, including early puberty with menstrual bleeding, development of breasts and pubic hair and an increased rate of growth; and skin changes, with areas of increased pigment distributed in an asymmetric and irregular pattern. Today, the term "McCune-Albright syndrome" is used to describe patients who have some or all of these bone, endocrine, and skin abnormalities. In the years since it was first identified, however, researchers have studied many additional patients, and have learned that the condition has a broad spectrum of severity. Sometimes, children are diagnosed in early infancy with obvious bone disease and markedly increased endocrine secretions from several glands; a very few of these severely affected children have died. At the opposite end of the spectrum, many children are entirely healthy, and have little or no outward evidence of bone or endocrine involvement. They may enter puberty close to the normal age, and have no unusual skin pigment  at all. Thank you for visiting our new Internet site. As an up-to-date business, we want to give you the opportunity to stay in touch with our company and our offers. A new content management system will enable us to always keep you up to date.